What does it mean to truly be heard when you can’t speak? Jessica Frew, a nonverbal actress, model, and passionate disability advocate, joins We’re Not Stumped to share her powerful story of living with cerebral palsy and using an eye gaze device to communicate—a technology she began using at just nine years old.
While Jess initially limited the device to school and close friends, she opens up about the emotional weight of using it publicly and the deeply personal regret of not speaking to her father through it before he passed away.
Over time, Jess found strength in her voice and now uses it to educate, advocate, and challenge misconceptions about nonverbal individuals. She speaks with host Mike Bolland about the common experience of being talked down to or ignored—and how she responds with patience, courage, and relentless advocacy.
Jess also talks about modeling with Runway of Dreams, pushing for more disability representation in fashion and entertainment, and fighting for real change in policy—from disability education in schools to raising income limits for Medicare. She introduces her book The Disabled, or the Nonverbal Princess and teases exciting upcoming projects, including a love story and a TV pilot about an inter-abled couple.
This is a story of voice beyond words, and of a woman determined to make sure others like her are seen, heard, and respected.
#DisabilityAdvocate #CerebralPalsyAwareness #NonverbalVoices #InclusionMatters #AdaptiveTechnology #RepresentationMatters #RunwayOfDreams #DisabilityRights #AuthenticRepresentation #WereNotStumped
Listen on Apple Podcasts
Watch on YouTube
Listen on Spotify
What happens when people underestimate your potential your entire life—and you refuse to let them define your future? In this episode of the We're Not Stumped podcast, I sit down with Denny Burke, a licensed master social worker, disability advocate, and speaker who has spent his life proving that disability does not determine what someone can achieve. Growing up legally blind and facing additional disabilities, Denny endured bullying, low expectations, and barriers that could have shaped the rest of his life. Instead, with the encouragement of mentors and his own determination, he became the first person in his immediate family to graduate from college and is now dedicated to helping others find their voice through self-advocacy and social work.
What happens when a life-changing accident forces you to redefine everything you thought was possible? On this episode of the We're Not Stumped podcast, I sit down with Dr. Kirsten Ludwig—a biomedical researcher, educator, former professional polo player, and advocate for disability inclusion in healthcare. In 2021, Dr. Ludwig was paralyzed from the neck down during a horseback riding accident. Through determination, rehabilitation, and an incredible commitment to recovery, she became what she describes as a walking quadriplegic. Today, she combines her lived experience with her work as an Associate Professor of Biomedical Science at the Kaiser Permanente Bernard J. Tyson School of Medicine, helping educate future physicians about disability, accessibility, and patient-centered care.
What is it really like to live with hearing loss? . In this episode of the We're Not Stumped Podcast, Mike Bolland sits down with Janelle Parker, founder of TAMCO Learning, to discuss her lifelong journey with hearing loss and the lessons she's learned along the way. Janelle shares how she was born with a unique "cookie bite" hearing loss, received her first hearing aid before age four, and adapted to life in a world designed for hearing people. She also discusses the dramatic evolution of hearing aid technology, assistive devices, and accessibility tools that have transformed opportunities for people with hearing loss. Whether you're living with hearing loss, supporting a loved one, or simply interested in learning more about accessibility and communication, this episode offers practical advice, inspiration, and valuable perspective.
