In this episode of We’re Not Stumped, host Mike Bolland sits down with Joslynn Bigelow, founder and CEO of Say How Consulting, for a powerful conversation on disability advocacy, system navigation, and adaptive sports.
Joslynn shares her personal journey into advocacy, the launch of her consulting business, and her five guiding principles for creating inclusive services: dignity of risk, individual readiness, assess and address, authentic experience, and realistic opportunities. She also highlights her colleague Alexia Michitti’s adaptive clothing brand, Embrace 1-3-RACE, designed for individuals with limb differences and neurological conditions.
The discussion dives into:
- Why “say how” means finding solutions when systems say “no”
- The role of dignity of risk in fostering independence and inclusion
- The origins and growth of the United Adaptive Soccer Association (UASA)
- The challenges of advancing inclusion in adaptive sports
- The unique opportunities upcoming global sporting events offer for disability awareness
This episode is a must-listen for families, advocates, and anyone passionate about building authentic opportunities for people with disabilities.
Say How Consulting: https://sayhowconsulting.com
United Adaptive Soccer Association: https://unitedadaptivesoccer.com/
#DisabilityAdvocacy #AdaptiveSports #DignityOfRisk #Inclusion
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Dr. Carmen Elliott, the new President and CEO of the Amputee Coalition, joins Mike Bolland for a conversation about community, advocacy, and helping people with limb loss and limb difference find the support they need. Carmen shares how her family’s experiences with healthcare access and limb loss shaped her commitment to this work. Together, they explore the value of peer support, access to prosthetics, and including families and caregivers in the conversation. They also discuss support groups, certified peer visitors, AC Connect, and the upcoming “Fireside Connections” conference.
How do you move forward when vision loss changes your career, independence, and plans for the future? In this episode of We’re Not Stumped, Mike Bolland speaks with Jennifer Frederick about living with permanent vision loss and learning to advocate for herself along the way. Jennifer explains how changes in her vision eventually forced her to leave a career in crisis management. She also discusses the challenges she now faces while looking for work, including interview practices that have left her questioning whether she is being treated fairly as a person with a disability. The conversation explores Jenn’s decision not to undergo surgery for her detached retinas, the importance of seeking medical attention when your vision changes, and the need to take ownership of your healthcare.
What happens when we stop deciding what someone is capable of—and give them the opportunity to lead? In this episode of We’re Not Stumped, Mike Bolland speaks with Nathan Kennedy of Upstream Fitness, Chris Kocurek, and Chris’s son, Coach Cameron “Coach Cam” Kocurek. Cameron, who has Down syndrome, began gymnastics as a child and went on to compete through Special Olympics and unified gymnastics. Today, he is using the confidence and skills he developed as an athlete to help coach others at Upstream Fitness. Nathan explains how Upstream Fitness uses movement, games, coaching cards, and step-by-step instruction to make exercise accessible for people with intellectual and developmental disabilities. Chris shares Cameron’s journey from athlete to assistant PE coach—and now toward meaningful employment and greater independence.
