What does it mean to truly be heard when you can’t speak? Jessica Frew, a nonverbal actress, model, and passionate disability advocate, joins We’re Not Stumped to share her powerful story of living with cerebral palsy and using an eye gaze device to communicate—a technology she began using at just nine years old.
While Jess initially limited the device to school and close friends, she opens up about the emotional weight of using it publicly and the deeply personal regret of not speaking to her father through it before he passed away.
Over time, Jess found strength in her voice and now uses it to educate, advocate, and challenge misconceptions about nonverbal individuals. She speaks with host Mike Bolland about the common experience of being talked down to or ignored—and how she responds with patience, courage, and relentless advocacy.
Jess also talks about modeling with Runway of Dreams, pushing for more disability representation in fashion and entertainment, and fighting for real change in policy—from disability education in schools to raising income limits for Medicare. She introduces her book The Disabled, or the Nonverbal Princess and teases exciting upcoming projects, including a love story and a TV pilot about an inter-abled couple.
This is a story of voice beyond words, and of a woman determined to make sure others like her are seen, heard, and respected.
#DisabilityAdvocate #CerebralPalsyAwareness #NonverbalVoices #InclusionMatters #AdaptiveTechnology #RepresentationMatters #RunwayOfDreams #DisabilityRights #AuthenticRepresentation #WereNotStumped
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Podcast host Mike Bolland is looking to connect with individuals willing to share their experiences with prosthetists and prosthetic care. If you’ve ever faced challenges with a prosthetist, received a prosthetic that didn’t meet your needs, or discovered a provider who went above and beyond, your story can make a difference. On his show, We’re Not Stumped, Mike engages in open, honest conversations about life with limb loss, prosthetics, and advocacy. His mission is to give a voice to the limb loss community, spotlight real experiences — both the good and the bad — and work toward improving the system for everyone. Mike invites you to be part of this important dialogue, knowing that your insights could help others navigate their own prosthetic journeys with greater confidence and support. 📩 Interested in being a guest? Visit: https://werenotstumped.com/were-not-stumped-limb-loss-podcast-guest-guide/
In this heartfelt and uplifting episode of We’re Not Stumped, host Mike Bolland welcomes Katie Thomas for a conversation filled with honesty, humor, and hard-earned wisdom. Born without her right arm below the elbow, Katie began receiving care at Shriners Hospital in Tampa at age 3 and experimented with various prosthetics throughout her childhood. Over time, she discovered that prosthetics were a helpful tool—but not essential for her to live a full, capable life. Now a devoted parent, Katie opens up about raising her son, who has Witteveen Colk syndrome, a rare genetic disorder. She shares her journey through early intervention services, advocating for genetic testing, and ensuring her child receives the support he needs. Her advice to parents? Trust your instincts, push for answers, and never hesitate to speak up for your child.
Jeanette Jones returns to the We’re Not Stumped podcast with host Mike Bolland for a powerful conversation that goes beyond music. She shares a shocking and emotional story about the accessibility barriers she and her partner Frank encountered at a Def Leppard concert at the Bethel Woods Center for the Arts. From steep hills to discriminatory treatment by staff, their experience sheds light on how accessibility still falls short—even in 2025. But that’s just the beginning. Jeanette also opens up about her own journey—surviving childhood cancer, transitioning from prosthetics to a wheelchair, and the incredible resilience of her partner Frank after his life-changing accident. This episode is about more than one bad night—it’s a call to action for accessibility, empathy, and real change.
