What does it mean to truly be heard when you can’t speak? Jessica Frew, a nonverbal actress, model, and passionate disability advocate, joins We’re Not Stumped to share her powerful story of living with cerebral palsy and using an eye gaze device to communicate—a technology she began using at just nine years old.
While Jess initially limited the device to school and close friends, she opens up about the emotional weight of using it publicly and the deeply personal regret of not speaking to her father through it before he passed away.
Over time, Jess found strength in her voice and now uses it to educate, advocate, and challenge misconceptions about nonverbal individuals. She speaks with host Mike Bolland about the common experience of being talked down to or ignored—and how she responds with patience, courage, and relentless advocacy.
Jess also talks about modeling with Runway of Dreams, pushing for more disability representation in fashion and entertainment, and fighting for real change in policy—from disability education in schools to raising income limits for Medicare. She introduces her book The Disabled, or the Nonverbal Princess and teases exciting upcoming projects, including a love story and a TV pilot about an inter-abled couple.
This is a story of voice beyond words, and of a woman determined to make sure others like her are seen, heard, and respected.
#DisabilityAdvocate #CerebralPalsyAwareness #NonverbalVoices #InclusionMatters #AdaptiveTechnology #RepresentationMatters #RunwayOfDreams #DisabilityRights #AuthenticRepresentation #WereNotStumped
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What does it really take to learn to walk again after an amputation? In this episode of We're Not Stumped, Mike Bolland welcomes physical therapist John Lottes, DPT, Clinical Supervisor at First Step Physical Therapy and an adjunct professor who specializes in prosthetic rehabilitation. John shares how an unexpected career path led him to working with individuals with limb loss and explains why the biggest hurdle in recovery often isn't physical—it's confidence. Together, Mike and John discuss the importance of celebrating small victories, building trust with your rehabilitation team, and developing the mindset needed to regain independence.
Sometimes, the biggest changes don't happen in a lab—they happen with a few carefully chosen words. In this episode of the We're Not Stumped podcast, I want to personally thank the LN-4 Hand Project (https://ln4handproject.org/) for updating its mission statement to better reflect the entire upper limb limb loss community. For many years, organizations have understandably focused on a specific group of individuals. But recognizing and including everyone living with upper limb loss and limb difference sends a powerful message: you belong, your story matters, and you are seen. As someone born without a right hand, this change means a great deal to me personally, and I believe it represents an important step toward greater inclusion across our community.
What happens when disability advocates from across the country come together to shape the future of independent living and accessibility? In this solo episode of We're Not Stumped, I share my personal reflections after attending the National Council on Independent Living (NCIL) Annual Conference in Washington, D.C., where I represented Ability360 as a member of its Board of Directors. From celebrating ADA36: We Won't Go Back to hearing powerful stories from advocates, policymakers, and leaders in the disability community, the conference reinforced why protecting and advancing disability rights remains so important.
